Outreach Manager, Simons Variations in Individuals Project
October 5, 2018
New York, New York
Full Time - Experienced
4 Year Degree
The Simons Variations in Individuals Project (VIP) Outreach Manager’s primary role will be to engage and cultivate a research community of individuals with genetic variants associated with autism spectrum disorder and other neurodevelopmental disorders. Reporting to the senior project manager, the Outreach Manager will provide day-to-day management and oversight of communications with all genetic groups in support of initial recruitment, long-term retention and engagement in research. The Outreach Manager will also organize and disseminate timely research education materials to the community in order to raise awareness of the importance of research participation in rare disease groups.
Gather information from stakeholders (individuals with genetic diagnoses, family members/caregivers, SFARI researchers, Simons VIP and Simons Foundation staff) to determine key needs and messages to better enable Simons VIP to recruit and retain genetic communities of interest.
Develop and execute a detailed and substantive recruitment and engagement plan across website, social media and print channels.
Initiate and manage outreach content calendars for all of Simons VIP’s digital and print assets, webinars and quarterly newsletter for families, participants and research communities.
Manage development of all collateral materials for Simons VIP in collaboration with contracted marketing professions and study coordination staff
Develop and take a leadership role in externally facing digital engagement activities (webinars, Twitter chats, Facebook live, etc.).
Identify, track and analyze metrics for evaluating the success of Simons VIP outreach efforts.
Establish a Simons VIP community advisory council to provide a mechanism for both directly engaging the community in Simons VIP and eliciting feedback on communication strategies and community research interests
Establish and maintain positive working relationships with participant leaders of genetic family organizations
Work with the science team members to ensure communications and outreach strategies are scientifically valid and to identify research publications of high quality and relevance that can be shared with Simons VIP participants through webinars and/or research summaries on the website.
Seek out and reference resources from other organizations to augment existing Simons VIP materials for participants and family organizations (e.g., Global Genes, Genetic Alliance, Unique).
Interface with SFARI and Simons Foundation outreach managers to harmonize messaging where appropriate and develop cross-project/co-branded communications/webinars for participants as necessary.
Identify possible researchers of interest for various genetic communities and develop a communication plan to encourage broader research use of Simons VIP resources
Attend conferences and community events to accurately represent Simons VIP’s mission and progress
Perform any other duties as assigned or required
Bachelor’s degree required; advanced degree in a relevant field is desirable.
Background in genetic counseling and/or experience with genetic, neurodevelopmental or neuropsychiatric disorders is strongly preferred.
Five or more years of experience managing an outreach/social media campaign; experience in health outreach campaigns a plus.
Demonstrated experience and success in project management
Experience engaging people in person and online
Public speaking experience
Related Skills & Other Requirements
Excellent written and verbal communication skills
Excellent organizational skills
Experience and facility with various tools of digital technology and communication, including content management systems and marketing and outreach tools, such as Google Analytics, Twitter and Facebook, as well as understanding of user experiences.
Energetic with creative problem-solving skills
Sound judgment and exceptional ethical standards
Ability to understand relevant scientific content and maintain scientific accuracy while representing Simons VIP
Ability to inspire and forge strong collaborative partnerships
Comfortable working independently and in a collaborative team environment
Adaptable to quickly changing priorities
Advanced skills in the use of Microsoft Office Suite, particularly Excel and PowerPoint.
Ability and willingness to travel
REQUIRED APPLICATION MATERIALS
Please submit a résumé and cover letter stating your interest in the position.
THE SIMONS FOUNDATION'S DIVERSITY COMMITMENT
Many of the greatest ideas and discoveries come from a diverse mix of minds, backgrounds and experiences, and we are committed to cultivating an inclusive work environment. The Simons Foundation provides equal opportunities to all employees and applicants for employment without regard to race, religion, color, age, sex, national origin, sexual orientation, gender identity, genetic disposition, neurodiversity, disability, veteran status or any other protected category under federal, state and local law.
Internal Number: R0000387
About Simons Foundation
The Simons Foundation is a private foundation established in 1994 in New York City by Jim and Marilyn Simons. With an annual grants and programs budget of $300 million, the foundation’s mission is to advance the frontiers of research in mathematics and the basic sciences.
The foundation pursues its mission through its grant-making division, comprising programs in Mathematics & Physical Sciences, Life Sciences, Education & Outreach and autism research, and through its internal research division, the Flatiron Institute.